My Treatment Path

When I was first diagnosed with MS, I was put on Lemtrada. It was my first disease modifying therapy (DMT), and at the time, I thought it was my ticket to slowing the disease down, maybe even taking control again. And for a while, it did its job.

It gave me hope, a sense that maybe I could keep living life without constant setbacks.

But 18 months after my Lemtrada infusions, the relapses came back. And this time, they left their mark. I started to feel the decline creeping in, harder and faster than before. My mobility suffered, I need a walking stick now, rely on a mobility scooter, and even self-catheterization became part of daily life. Fatigue hit me like a battering ram, my strength drained, and simple things became huge battles.

It was devastating. I went from thinking I was managing MS to facing the reality that the disease was still in control.

That feeling of losing independence, of watching your body betray you, is hard to put into words.

After this, I started Ocrevus. Since starting it, the good news is there have been no new lesions or inflammation on the brain. No fresh relapses, that’s a relief, a win I hold onto tightly. But the decline hasn’t completely stopped.

My body is still weakening, my energy still fluctuates and the slow loss of abilities is a daily reality.

MS has shown me that treatment is never a straight line. Some days you feel like you’re taking steps forward, other days it feels like two steps back. But each medication, each infusion, is part of the journey, part of fighting, part of holding onto life in the ways you still can.

My treatment path isn’t perfect. It hasn’t stopped everything but it’s kept me here. I'm still moving, still showing up for my wife and kids, still finding ways to live even when my body tries to slow me down.

That’s the truth of MS, it’s messy, it’s complicated, and relentless but it’s also a reminder that every day I keep going is a day I win.